Publications

Survey Creation: Kats, D. J., Skotko, B. G., de Graaf, G., Skladzien, E., Hooper, B. T., Mordi, R., Mykhailenko, T., Buckley, F., Patsiogiannis, V., Krell, K., Haugen, K., & Donelan, K. (2023). Designing an international survey for organisations serving people with Down syndrome. Journal of Applied Research in Intellectual Disabilities, 1–10. https://doi.org/10.1111/jar.13071

Data Analysis (2023): Kats, D. J., Donelan, K., Banerjee, S., de Graaf, G., Skladzien, E., Hooper, B. T., Mordi, R., Mykhailenko, T., Buckley, F., Santoro, S. L., Patsiogiannis, V., Krell, K., Haugen, K., Skotko, B. G. (2024). Results of Inaugural International Down Syndrome Societal Services and Supports Survey. Genetics in Medicine. https://doi.org/10.1016/j.gim.2024.101114

Presentations and Press/Media

Massachusetts General Hospital Press Release: Ridings, M. Massachusetts General Hospital. March 21, 2024.

Grand Rounds (2023): Kats, D.J. Massachusetts General Hospital. March 21, 2024.

United Nations Presentation (2023): Skotko, B.G. Celebrating Ability: Investing in and Accompanying Children and Adults with Down Syndrome and their Families (CSW68 Side Event). United Nations. March 21, 2024.

News (Boston, United States FOX25): Skotko, B.G. Massachusetts General Hospital. March 25, 2024.

Radio (Ottawa, Canada 580 CFRA): Kats, D.J. Ottawa at Work with Patricia Boal. March 25, 2024.

News (Boston, United States WCVB/ABC): Skotko, B.G. Massachusetts General Hospital. March 28, 2024.

Radio (Canada, Sirius XM): Skotko, B.G. Canada Now with Jeff Sammut. April 4, 2024.

Genetics in Medicine Podcast (May 2024): Skotko, B.G., Kats, D.J., Graber, C. Genetics in Medicine. May 14, 2024.

Website Citation Information

Authors: Daniel J. Kats, MD; Karen Donelan, ScD; Souvik Banerjee, PhD; Gert de Graaf, PhD; Ellen Skladzien, PhD; Brian Takashi Hooper, BA; Rose Mordi; Tetiana Mykhailenko; Frank Buckley; Stephanie L. Santoro, MD; Vasiliki Patsiogiannis, BA; Kavita Krell, BA; Kelsey Haugen, BA; Brian G. Skotko, MD, MPP

Website title: Down Syndrome Societal Services and Supports Survey

Year created: 2023

URL: www.downsyndromequalityoflife.com

Please cite this publication: Kats, D. J., Donelan, K., Banerjee, S., de Graaf, G., Skladzien, E., Hooper, B. T., Mordi, R., Mykhailenko, T., Buckley, F., Santoro, S. L., Patsiogiannis, V., Krell, K., Haugen, K., Skotko, B. G. (2024). Results of Inaugural International Down Syndrome Societal Services and Supports Survey. Genetics in Medicine. https://doi.org/10.1016/j.gim.2024.101114